I want to record this time so Wotsit and Pickle can understand a bit more when their older, should they want to. To catch up on last few weeks, I'm posting some of the updates I've sent to friends and family.
To the school Mums - 15/4
Unfortunately Wotsit was diagnosed with Leukaemia on Friday. He is fine so far, just pale and tired with a few aches and pains and already a bit fed up with being prodded. He is undergoing tests today to confirm his diagnosis which is believed to be ALL (Acute Lymphoblastic Leukaemia). This is the most common and most treatable form of Leukaemia and the prognosis is as good as you could hope for. His treatment will start immediately and will be chemo rather than radiotherapy. He’s at the Royal Marsden so in very good hands. We’ll be there for the next week to 10 days and then I think we’re allowed home if all has gone to plan. The treatment for Leukaemia for boys goes on for 3 years and this will be mostly at the Royal Surrey, some at the Royal Marsden and some at home. He will at some point return to school but no idea at the moment of when that is allowed to happen. When he does return, the biggest concern will be infection control, ensuring that he doesn’t catch anything nasty that his white blood cells can’t cope with. The school will help us all understand how we best do that at a later date.
Our primary concern is to get Wotsit well and for Pickle to remain secure and stable at school. Pickle is very much missing his little brother, they are very close. Whilst I know that everyone will wish us well and will be keen to know how Wotsit is getting on, we would really appreciate it if you would talk to us at pick up before we have collected Pickle.
Please don’t worry about what to say when you see us! It’s fine. Email if you want to (it’s sometimes lonely in hospital) and phone reception is terrible.