Wotsit was discharged last Friday and we've had a great week at home. Having the whole family in one place is undoubtedly easier and a lot more fun. Wotsit's highlight of the week would probably be chips and ketchup at the local pub. He talks of little else. The steroids have kicked in big time and are now affecting both appetite and moods. I hate to think what will happen if we ever actually run out of houmous!
Medicine became a huge battle again once we came home (tears all round)
but Wotsit has decided that 'quickly is best' and is now being a superstar. No
fuss at all. He was sick a couple of times last weekend but anti-sickness meds
are currently doing their job v well.
The community nurse visited Wednesday and reattached Wotsit's line so she
could take blood. Not a pleasant experience. Wotsit doesn't seem to mind the
needle but has a pathological hatred of cold cream and tape. I feel sorry for
the neighbour who was knocking on the door at that particular time! I'm hoping
that this will become another minor procedure which Wotsit will learn to
tolerate soon. The blood results weren't too bad but he's had a blood
transfusion today just to boost his haemoglobin and platelets.
The tippy-toe walking, brought on by the Vincristine, has reduced but
still need to watch for this (and continue the physio) as the drug builds up in
his body. Wotsit's not particularly keen on walking far at the minute so we've
borrowed a pushchair to help us venture to the park. However, I think he's
enjoying being pushed a little bit too much...
Wotsit's provisional bone marrow test yesterday wasn't required, as last
week's test showed a good enough reduction in leukaemia cells. A good sign at
Chemo today. All good, just a lot of hanging around.
Appointment at 10, left hospital at 11.45. Then back for blood transfusion at
2.15. Finally home at 6. Luckily, Wotsit has been showered with gifts (thank
you & no more please) making entertaining him pretty easy. If that doesn't
work, I just ply him with food.
We've had a few visitors this week and it's been great to see some
friendly faces. Wotsit's been tired so hasn't been running around with his
buddies but he has enjoyed their company. I think they're a little more
entertaining than Mummy!
I'll try and update weekly but if you don't hear from us, please don't
worry, it means there's nothing exciting to say and therefore all must be well.