This is the third phase of Wotsit’s treatment (Interim Maintenance) and it’s also when the 3 year countdown begins. I.e. 3 years from now, his treatment (all going well) should be complete. The fourth phase also lasts for 8 weeks and is called Delayed Intensification (similar to the first 2 phases with some steroids thrown in for good measure). Then we move into the final Maintenance period. As Wotsit is having such a high dose of Methotrexate during the current phase, he will not require any chemo via lumbar punctures during the final phase (previously given every 12 weeks). He will also not be given Vincristine or steroids – we are really pleased about this.
It’s been a long while waiting for Wotsit to have the lumbar puncture and to get the results but it has meant that he has been chemo free for c4 weeks, so he is on top form. Pickle is very happy to have his playmate completely back and we have had a lovely summer break so far. The next 8 weeks (starting on the 21st August) will be particularly tough on Pickle as he will miss his brother (possibly his Mummy) and will be a bit frustrated, and maybe worried, if Wotsit’s not feeling great. Hopefully he’ll get through it okay with lots of support from us, school, grandparents & friends.
We’ve managed to keep Wotsit’s birthday a ‘treatment free’ day so looking forward to celebrating that on the 27th. He will also be able to attend his first day of Year 1 (although he will be whisked to hospital at 3.15pm the same day!).
We’ll keep you posted on how he’s getting along and see some of you soon.
Lots of lovexx
P.S. Participating in a ‘trial’ seemed quite scary initially when you’re trying to ensure your child is fully fixed from leukaemia. Rest assured, they’re not allowed to do anything crazy! The protocol Wotsit will be following is tried and tested in other countries and is the method the UK is hoping to adopt as it should give children a much better quality of life during the treatment.